Showing posts with label hyperactive. Show all posts
Showing posts with label hyperactive. Show all posts

Wednesday, May 22, 2013

NPR Health Blog: Childhood ADHD can lead to adulthood obesity

The title of this blog comes from a quote by hypertext inventor Ted Nelson who once told Wired Magazine that having Attention Deficit Hyperactivity Disorder (ADHD) was like having a "hummingbird mind." I wrote an essay for the late lamented Northern Lights magazine about rock climbing with my son who has ADHD. I used Nelson's quote in the article and the editor used it for the headline. So, in 2005. I decided to use it for the name of the blog as my initial idea was to blog about ADHD, as blogging and hyperactivity seemed to go together. I was sidetracked by politics and various other topics so my blog is a lot more wide-ranging than anticipated.

That brings me to today's post about ADHD. I came across it via a Facebook post from renowned ADHD expert Dr. Edward "Ned" Hallowell. The good doctor wrote the intro to an anthology that featured some of my writing, Easy to Love but Hard to Raise: Real Parents, Challenging Kids, True Stories. He writes on his site today about the fact that childhood ADHD can lead to adult obesity. He quoted an article about a recent study featured on the NPR Health blog. Overeating releases dopamine which is what human nervous systems crave. A pint of Ben & Jerry's at midnight is just what the impulsive person ordered. But not the cardiologist. Read more here.

Sunday, February 17, 2013

Recommended reading: "Raising Adam Lanza" in the Hartford Courant

My wife Chris and I raised two kids with special needs. Our son was diagnosed at five with Attention Deficit Hyperactivity Disorder (ADHD). Our daughter had learning disabilities and mental health challenges. They are both adults now and doing well. But Chris and I know only too well the frantic calls from school, the many meetings with teachers and counselors, the convoluted Individualized Educational Plans (I.E.P.s) and the heartache that goes along with it all.

That's one of the reasons it was so intriguing to read "Raising Adam Lanza," the first installment in a series in the Hartford Courant. It's the kind of article that newspapers used to be known for. Courant reporters interviewed friends, family, teachers and neighbors to try to get to the bottom of Adam Lanza's murderous rampage at Sandy Hook Elementary School in Newtown, Conn. Adam was diagnosed with Asperger's Syndrome, a form of autism, and sensory integration disorder.

The vast majority of teens with ADHD or OCD or any of the many alphabet soup of disorders or syndromes never turn to violence. Those that do tend to make big, bold headlines. That's why it's important to learn all we can about them. In hindsight, Adam Lanza's mother made poor choices in withdrawing her son from school, and keeping him isolated at home. She also chose the wrong hobbies to help her bond with her sons: gun collecting and target shooting. And Adam spent way too much time playing violent video games. All that taken together led to the Sandy Hook shootings. There may be other reasons, too. I suggest you read the articles and/or watch the concurrent airing of the story on PBS's Frontline. This is an interesting collaboration between a daily newspaper and a PBS show. Maybe it's the wave of the future.

Read today's Courant article here.

Monday, April 02, 2012

Easy to Love but Hard to Raise: "You are not alone"

One of my essays, "The Great Third Grade AIDS Scare," is in this anthology. The overall message of the book and the blog and all of its writers is "You are not alone," even though it sometimes feels like it. All kinds of compelling posts on the blog about medications, education, outreach, relationships, resources, etc. To connect, go to the blog at http://www.easytolovebut.com/

Sunday, January 15, 2012

Amazon.com releases "Easy to Love but Hard to Raise" anthology


Amazon.com has just released the anthology “Easy to Love but Hard to Raise: Real Parents, Challenging Kids, True Stories" from DRT Press. Order your copy here

Here’s the book blurb:
If there's anything the 32 parent-writers and 15 experts of Easy to Love but Hard to Raise want you to know, it's this: 
YOU ARE NOT ALONE. We've been there. We've done that. We've navigated the system. Some of us succeeded. Some failed. We've been judged by friends, teachers, family, & strangers. We've gotten the phone calls & the looks. We've done things we never thought we'd do, good & bad. We've been up nights, cried in our pillows, and screamed in frustration. We've doubted ourselves, our children, & our partners. We've had to educate everyone, including our children's doctors. We are parents of children with alphabet soup diagnoses, invisible special needs, behavioral problems.Our children are easy to love, but oh, so hard to raise. 
Easy to Love but Hard to Raise is an anthology of personal essays written by parents of children with ADD, ADHD, OCD, PDD, ASDs, SPD, PBD and/or other alphabet soup diagnoses that takes the already difficult job of parenting and adds to the challenge. 
These essays focus on honest feelings, lessons learned, epiphanies, commonplace and extraordinary experiences. They are written by parents of toddlers, young children, teens, and adult children; those who are in the parenting trenches now, and those looking back on their parenting experiences. 
Topics include : how children came to be diagnosed, the experience of dealing with problem behaviors in various contexts and settings, experiences with/feelings about treatment (therapies, medications, alternative treatments), school (and other advocacy) experiences, children's social interactions/friends, and the effect of parenting a difficult child on a parent's emotional and physical health, marriage, and other relationships.
I’m one of these 32 parent-writers. My essay is entitled “The Great Third Grade AIDS Scare.” Buy the book. Read the essays. You’ll have a much better idea about the challenges faced by kids with ADHD, OCD, PBD, etc. – and their parents.

I’ve written a number of hummingbirdminds' posts about the struggles our children have had with ADHD, ADD, learning disabilities, addiction and mental illness. You can look them up!

"Easy to Love but Hard to Raise" has a Facebook fan page. Check it out here.

Tuesday, October 18, 2011

Easy to be driven to distraction by UW's "Distracted"

I have a special interest in this play:


DISTRACTED

Oct. 25-29, 7:30 p.m.; Oct. 30, 2 p.m.

In the Fine Arts Studio Theatre, UW in Laramie
 
What’s wrong with nine-year-old Jesse? He can’t sit still, he curses, he raps, and you can’t get him into—or out of—pajamas. His teacher thinks it’s Attention Deficit Disorder. The psychiatrist thinks he needs medication. Dad thinks he’s just being a boy. And Mama’s on a quest for answers. Is Jesse dysfunctional, or just different? This Off-Broadway hit by the author of GIRL, INTERRUPTED and THE WAITING ROOM is a fast-paced and disarmingly funny look at “parenting in the age of the Internet and Ritalin.” 

DISTRACTED contains language and themes that some might find objectionable.
“Witty and insightful.” — Theatermania
“A smartly comic, sharply observant and surprisingly humane play.” — Associated Press
“...an issue-driven play about parenting and pills that tickles both your brain and your funny bone” — Time Out New York

Saturday, January 15, 2011

Wyoming's UPLIFT displays the better side of human nature

It was a week marked by savagery and bravery.

A disturbed young man shoots 18 people in front of a Tucson grocery store. Six of them die, the rest wounded, one -- Rep. Giffords -- critically.

Amidst the slaughter, people rushed to save the wounded and subdue the attacker. You're heard the stories, if not from Cable news than from Pres. Obama's eloquent speech at Wednesday's memorial.

What causes some people to run away from chaos and others to run toward it? I've been asking myself that question all week. Daniel Hernandez ran toward the gunfire and tended to his boss's wounds. He didn't leave her side until the ambulance got her to the hospital. When he spoke Wednesday, we saw a self-confident and self-effacing 20-year-old college student. He's devoted himself to a life of public service. We saw that commitment to both the "public" and "service" parts of the equation this week.

When challenged, we will sacrifice our own lives to help our fellow humans. This is the good side of our nature, the empathetic and charitable side. Researchers announced recently that there is a part of us -- the "altruism gene" -- that promotes charitable instincts. We also know that there are parts of us that respond to the venal and violent.

In the end, which wins out? Physiology is only part of it. Family upbringing makes a difference, as do other role models. Intelligence and education do to too, although we know that many sins have been committed by "the best and brightest." Religion can play a part. Again, many slaughters have been committed by the righteous.

I was thinking of this yesterday during the quarterly board meeting of UPLIFT in Cheyenne. We are a volunteer board of 14 members. We just welcomed a new one, LaWahna Stickney, from Thayne. We now are a truly statewide board, with members from Cheyenne, Laramie, Casper and Thayne. Most of us became involved in children's mental health and behavioral issues because our own children were struggling. Teachers complained that our kids were unruly and defiant. Other parents complained when our children got aggressive on the playground. We were at wit's end at home because we could not understand why our little darlings were such monsters. Weren't we kind and generous and educated human beings?

We were stymied when we attempted to find help in the community. We were either told outright -- or it was implied -- that we were bad parents with bad kids. We knew that wasn't true. By the time our son, Kevin, was five, we'd seen practically every specialist along Colorado's Front Range. We finally found a psychiatrist in Fort Collins, Dr. James Kagan, who diagnosed Kevin with ADHD and helped put us on the right road. That involved medication in the form of Ritalin. Therapy, too. But we still had this weird sense that we were all alone in this, that it was our struggle to bear and understand.

Finding UPLIFT when we moved to Cheyenne gave us some handy tools, especially when it came to dealing with schools. We also found similar struggles among its staff and board. We discovered helpful ways to deal with schools. It was cathartic to share our stories and hear those of others.

Here's UPLIFT's mission statement:
Encouraging success and stability for children and youth with or at risk of emotional, behavioral, learning, developmental, or physical disorders at home, school, and in the community.
UPLIFT just marked its 20th anniversary of service to Wyoming. At yesterday's board meeting, we heard details of our recent financial setbacks. UPLIFT is an organization that gets 97 percent of its funding from governmental (mostly federal) sources. Sometimes you get turned down for grants, and sometimes funding streams dry up. Strings are attached to most government funding. So, while your organization has a significant budget, you may not have enough money to pay for the basics, such as salaries, electricity and a office space. It's a truism in the world of non-profits -- keeping the lights on is the biggest challenge.

UPLIFT had to cut the administration budget. That includes salaries and benefits, including health insurance. Two employees left because that health insurance was crucial to them -- many employees have kids with special needs. One employee moved out of state. The ones that remained not only stayed and worked with their clients around this very rural state, but they even stopped claiming travel reimbursements. Some employees even made cash contributions. That's something, isn't it? Salaries and benefits get cut, yet you still find the means to put some cash in the kitty.

They know that this is a short-term problem. They also know that the cuts bring pain to their boss, Peggy Nikkel. They are certain of the good work they do and don't want it to stop or interrupted. Most of their time is spent working with families. They accompany parents to school meetings, helping them make sense of the requirements with the Americans with Disabilities Act and Individualized Education Programs. At these meetings, the principal and school psychologist and half the teachers are arrayed against you. We have had several of UPLIFT's family support specialists (Judy Bredthauer, for one) at these meetings and it made a huge difference. They are cool and calm and knowledgeable. They can get tough when presented with intransigence. But the main thing is that schools now know that UPLIFT can be trusted. Oftentimes, they welcome the participation of UPLIFT staffers.

As I've recounted often on these pages, Wyoming is a huge, rural state with many challenges when it comes to children's mental health.

UPLIFT, an affiliate of the Federation of Families for Children's Mental Health, fills a huge gap. Its staffers don't provide clinical services, but they are the great connectors between families and those services. They can translate government regulations. For cash-strapped families, they find funding. They make sense of the great big world of mental health.

They are on a mission. Maybe, as were the Blues Brothers, they are on a mission from God. Whatever their motivations, they come from the better side of human nature.

By the way, if you want to stimulate your own better natures, you can donate to UPLIFT by going here.

Looking for help, call toll free 888-875-4383.

Friday, September 18, 2009

Hummingbird Mind: My son Kevin, the climber

To commemorate ADD/ADHD Awareness Week (Sept. 14-18), I offer this essay, "We Are Distracted," which in a slightly different form appeared in the 1996 book In Short: A Collection of Brief Creative Nonfiction, W.W. Norton, edited by Judith Kitchen and Mary Paumier Jones.)

I. WE ARE DISTRACTED

We are distracted by the agility of my eight-year-old son Kevin as he clambers up the slick granite rock formation near Rocky Mountain National Park. He is fifty feet above us; we are a bit frightened by the risks he takes, the way he clings like a human fly to the sides of the rock. We all look up and watch one of Kevin's handholds become a fingerhold and just when it's about to become a no-hold, he pushes off the rock with his feet, leaps a three-foot gap between spires, and wraps his arms tightly around the precious purchase he has made with this part of the Rockies.

We are like three slugs on a slab -- Kevin's classmate Freeman, his father Randy, and I. We lean against the cool rock surface of this six-million-year-old mountain and watch Kevin. We look up and Kevin never looks down. It would break his concentration, interrupt his communion with the rock, I think. To concentrate is everything for Kevin. He can't do it for extended periods of time unless he is under the influence of Ritalin, a drug that helps him control his hyperactivity-inspired impulsiveness. Right now as he climbs toward the sharp blue Colorado sky, the Ritalin, a central nervous system stimulant, is working on my son's brain stem arousal system causing to not be aroused. Medical researchers are not sure why a stimulant has the opposite effect on hyperactive kids. Says the 1994 Physician's Desk Reference: There is no "specific evidence which clearly establishes the mechanism whereby Ritalin produces its mental and behavioral effects on children, nor conclusive evidence regarding how these effects relate to the condition of the central nervous system."

II. HYPER/ACTIVE

When Kevin is in the classroom and a bird flies to a branch on a tree across the street, he will stop everything and look at the bird. A whispered comment at the opposite end of the classroom might as well be a sonic boom. If he is surrounded by too much energy in his orbit, he absorbs the energy. It sometimes causes him to twist and whirl and slam into his playmates; not so much now as when he was toddler and his way of playing was FULL BODY CONTACT. Slam, bam - and there was suddenly a kid crying, one nonplused Kevin and usually a very pissed-off parent, who soon would be in my face, asking me why I didn't control my son on the playground because he was really going to hurt someone someday.

III. NAMES, ALPHABETS, NAMES

Physicians have been prescribing Ritalin (a.k.a. methylphenidate) for more than 30 years for a condition that has been known as Minimal Brain Damage (MBD), Minimal Brain Dysfunction in Children (MBDC), Attention deficit Disorder (ADD), and ADD with Hyperactivity (ADHD). If some progressive therapists and groups such as CHADD (Children and Adults with Attention Deficit Disorder) have their way, the official designation may one day be changed to Attention Deficit Syndrome with hyperactivity (ADHS). This alphabet soup can be confusing. Once, on his first day at a new school, my son announced in front of the class that he had ADHD. The next day, several very nervous parents called the school, concerned about the new student who had AIDS. Being a "hyper" kid turns you into one type or pariah; AIDS carriers get special mistreatment. It was weeks before the confusion was straightened out. But the impression had been made. Kevin was different; different is bad.

IV. SOME THEORIES


Some critics, such as noted psychiatrist Peter R. Breggin, regard ADD/ADHD as chimeras, non-conditions, a conspiracy by the entrenched psychiatric establishment to dose our children with drugs. "Just Say No To Ritalin!" could be their battle cry.Thom Hartmann published the 1993 book Attention Deficit Disorder: A Different Perspective." He once summed up his book this way: "If you lived 10,000 years ago, before the agricultural revolution, and were part of a hunting society, then the ability to have an 'open, highly distractible' state of mind would be an asset. Walking through the woods/jungle, if you didn't notice that flash of light out of the corner of your eye, you may miss either the bunny which is lunch, or get eaten by a tiger."

Hartmann surmises that the ADD hunters were survivors and their DNA went into the gene pool. "Modern people with ADD are those with leftover 'hunter' genes."


There are a few problems with the theory. Since impulsiveness is one of the hallmarks of ADD and ADHD, isn't it likely that the hunter with hyperactivity might charge headlong into a herd of charging mastodons without considering the consequences? Maybe he would neglect to tread carefully in saber-tooth tiger country?

V. CONTRAINDICATIONS

The pharmacist always gives me a yellow sheet with Kevin's Ritalin prescription. Under "Side Effects" it reads: "Decreased appetite; stomach ache; difficulty falling asleep; headache." Under "Cautions:" DO NOT DRIVE, OPERATE MACHINERY, OR DO ANYTHING ELSE that might be dangerous until you know how you react to this medicine." It says nothing about rock climbing, although you might infer that it comes under "dangerous," or at least, risky.

VI. TO FALL...

Kevin never has fallen. When he was two, he climbed the highest trees in the park near our Denver home. Fifty-foot-tall pines and spruces. The first time he did this, her looked down at me and said, "You worried, Daddy?"

"Yes," I said, which seemed to please him.

So what if he falls? Randy, Freeman, and I watch him climb and this occurs to them because Randy says, "Does this worry you?"

"Yes," I say, "it worries me." And it thrills me too. I've seen him all alone on the playground because the mothers won't let their kids near him. I've seen him mark time in his room, usually because he's been restricted in some way because he's had trouble at home or on the school bus or on the playground.

VII. TO FLY...

Do rock climbers dream about falling or of flying? Do hyperactive kids dream of solitude on a granite mountain? Or do they dream of this: dancing and laughing, surrounded by friends, the mountains a distant mirage?

From the author: This was written 16 years ago, when my son Kevin was eight. At 24, he's a college student in Arizona, doing his own thing.